This Wasn't What I Ordered.

2013 kicked off with the realisation that several family members were complete and utter wankers. I thought long and hard about sharing...

When we approached 2020 I just knew it was going to be a big year. I felt in my bones that something huge was on the horizon. I have had...

The second half of 2012 saw a massive down turn in Alices gastric health. After my early battles to convince medical professionals that...

2012 was a weird year in so a many ways. We began to realise that Alice was perhaps going to be less affected than most cases of NKH and...

RETARD. There I said it. I even said it in shouty capitals. Chances are if you have a special needs child, or really just any sort of...

One subject that seems to come up a lot is what exactly can friends and family do for the family of a newly diagnosed NKH child. Or...

When you get a child that wasn’t quite what you were expecting, there are many standard sayings and meme’s and poems etc that you will...

At this point I couldn’t hide my despair any longer and I came off Facebook. I wasn’t eating or sleeping, I stopped seeing my friends, I...

This blog post includes the Facebook updates from the day of Alices birth on 15th July 2011, to the end of that year. Looking back, it...