This Wasn't What I Ordered.

Well its been a bloody long time coming but I can finally post a progress report on life in a shithole residence and the newly begun...

In the last Feeding Tube blog I said that our plan was to have her tube removed by Christmas. The reason for this time scale is because...

When told we need to get a move on because we are late for school “I stay home today. I’m dead” (Lies on floor face down). When asked if...

Face Book Status Update 14th Feb 2020 For almost 9 years this has been our life. 4 hourly meds and tube feeds 24/7 round the clock for...

George (freaking out): Mummy, Mummy! Quick there is a really bad smell in my room, Quickly Mummy pleeeeeease. Me: I cant smell anything....

I posted this on Facebook a year or so ago but its too good not to preserve for all eternity on the blog. I stole this image from a...

Alice recovered from her surgery remarkably well. She didn't have any seizures, she had no issues with her breathing, she came round...

At approximately 10 months old, Alice was at the top of the waiting list to have her Gastric Feeding Tube (G Tube) fitted. In the...

I’m going to do this post in a few parts. Simple as it might sound, I feel there is so much to it and it deserves a to be discussed in...

Saturday 9th May I was up bright and early at the crack of arse today for my long over due 8.30am hair appointment. Yet another benefit...

Saturday 2nd May Oh my god the bloody lingering smell of this damn dead rat. It really is the whiff that keeps on giving. Just when you...

Saturday 25th April We have internet, finally. After a full 7 days of Greg trying to work, me trying to keep up with blogs and Alices...

Saturday 18th April Today was non stop chaos. Alices wonderful carer came and collected her at 8am so she was safely out the house for...

Saturday/Sunday 4th, 5th April. Both days this weekend I have been totally confined to barracks with Thing One and Thing Two, while Greg...

Saturday 28th March I had great plans for today. I was going to finish packing some things for our non existent house move, then clean...

I was going to post about this latest comedic disaster as part of my weekly Lockdown Series but the more I think about it, the more...

Saturday 21st March I had hoped to kick off this week with some humour and wit. And yet despite the first words out of Alice's mouth this...

The Georgisms were coming thick and fast at this stage, in fact I think they possibly peaked. Alice's relentless therapies and hospital...

Now I know for a fact that this was a time in our lives when Alice's behaviour was really starting to cause concern and yet oddly, Ive...

Looking back at this period of the journey, its what I wasn't posting that surprised me most. Much like before the updates are happy and...