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This Wasn't What I Ordered.

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Team Underwood Lockdown. Part 8.

Saturday 25th April We have internet, finally. After a full 7 days of Greg trying to work, me trying to keep up with blogs and Alices...

Team Underwood. Lockdown Part 7

Saturday 18th April Today was non stop chaos. Alices wonderful carer came and collected her at 8am so she was safely out the house for...

Team Underwood. Lockdown Part 6.

Saturday 11th April Spent the entire day frantically working on the The Shit Shack, in time for the move on Friday/Saturday. We complete...

Team Underwood. Lockdown Part Five.

Saturday/Sunday 4th, 5th April. Both days this weekend I have been totally confined to barracks with Thing One and Thing Two, while Greg...

Team Underwood Lockdown Part Four.

Saturday 28th March I had great plans for today. I was going to finish packing some things for our non existent house move, then clean...

Team Underwood Lockdown Part Three

Saturday 21st March I had hoped to kick off this week with some humour and wit. And yet despite the first words out of Alice's mouth this...

Team Underwood Lockdown Part Two.

Saturday 14th March 2020 Today we went in search of soap in prep for the mid week self imposed lockdown. It seems toilet roll is just the...

Lyla Mae

Lyla Mae Rich 17thDecember 2010 – 2nd August 2017 In August 2017 the NKH family lost a dear dear girl to this shit of a condition.Now...

Team Underwood Lockdown Part One.

When we approached 2020 I just knew it was going to be a big year. I felt in my bones that something huge was on the horizon. I have had...

Not So Frequently Asked Questions.

Why didn’t anyone pick this up in pregnancy? NKH is so rare that no tests are done for it. It is not part of any newborn screening...

Amino Acids for Dummies.

You will often hear amino acids referred to as “the building blocks for protein”. Without protein we cannot live. Whist the nutritional...

NKH Drugs. What and Why.

Sodium Benzoate. Sodium Benzoate or SB, strictly speaking, isn’t a medicine as such, it is actually a food preservative that is used in a...

The Dreaded R Word.

RETARD. There I said it. I even said it in shouty capitals. Chances are if you have a special needs child, or really just any sort of...

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